Welcome to Discussions for Mom 2009-01-15T00:03:22Z 2009-01-15T00:03:22Z

To add to the note on respite care- look to the schools for financial help with respite care. The schools are required to have medically trained professionals in most states now (I have a two year old with CP and am also going into the teaching field), but they also should have a special needs coordinator (in Michigan we have Early On and First Steps) who could have a lot of information on who to contact and financial resources available to you. Other places to look include your local church- they can often help to donate money or help you find other organizations that can as well, and your hospital. Generally you can call the hospital but often if you go to patient services and deal with someone directly they can get you direct phone numbers and websites. Hope that helps.

2009-01-15T00:03:22Z 2008-11-29T06:49:11Z 2008-11-29T06:49:11Z

Thank you very much, you are really an inspiration and a BLESSING to the mother with a child or children with cerebral palsy. I have a little boy who has CP and has really been a BLESSING to me and my family. GOD only knows what best for us and I thank GOD very much everyday. I read your discussions on the CPParent website and I am really going to enjoy this website.

2008-11-29T06:49:11Z 2008-11-25T03:31:41Z 2008-11-25T03:31:41Z

As I was searching the internet I ran into your site and also another girl's CP website. I wanted to share it with you as I thought it might be something you would like to check out because she provides good information about what she has been through in her 12 years with CP. She has a lot she is willing to share with others with CP. That website was www.cpneighborhood.com. It sounded like she is doing something similar as you are with your website but from the CP impacted child's view.

2008-11-25T03:31:41Z 2008-11-22T05:03:18Z 2008-11-22T05:03:18Z

Dear Sir, We are proude to inform you that " lumbini cerebral palsy helping center " has been inisiated its programm for the cerebral palsy children in Nepal. As i am the parents of CP child. I have a doughter of 4 years old. She has a problem on her right part of her body, we diid lots of medical treatement but all useless. Later on six months ago we came to know that she has a broblem of cerebral palsy. Similar to my child there are 100 s of children suffering and inorder to help them I have registered one helping center. Although we have less resources and less knowledge on this matter. So you may help us for mutual programm or you may help by training facility. If you have plan to expand your services than we offer your helping center to go combine in Nepal inorder to help for the CP children. Aslo waiting for your good advice. Thank you. Best Regards Bal Krishna Aryal President Lumbini cerebral palsy helping center Nepal 00977-71-204316 00977-9857028160 email :- lumbinicp@wlink.com.np

2008-11-22T05:03:18Z 2008-09-16T16:09:33Z 2008-09-16T16:09:33Z

hi i have just received government approval for the first legally approved stem cell treatment centre in the world. it is in the seychelles which has been authorised by the health dept of the seychelles. how would i go about telling patients about this breakthrough? and the possibility of stem cell treatment for spinal cord injury, parkinsons disease and strokes and other neurological and vascular diseases? i am contactable on patel@westnet.com.au or the consultate to the seychelles on + 27 117068720.

2008-09-16T16:09:33Z 2008-07-20T01:11:30Z 2008-07-20T01:11:30Z

Hi Nathan, I applaud your efforts in getting your sites up and running. I hope they will help parents with their concerns. If I may ask, how is Sarah doing? I am 43 and afflicted with mild athetoid CP. It affects my right side (limited use of my right hand) and I have a slight speech impediment. I was diagnosed at 16 months. My parents did not hold me back from trying just about anything when I was young. Although not successful in a few things (roller skating for one) I did learn to ride a two wheel bike on my 4th birthday. After high school I found my niche babysitting for several families eventually finding one that I worked for as a nanny for 16 years (they have 5 children, ages 18 to 5). Due to having 2 back surgeries within one year and breaking a foot and a rib, I had to unfortunately quit. Now I keep busy quilting. It is a hobby I acquired in 1991 and I thank God I love to do it as it keeps me busy. I see you have Neil Sauter's adventure listed. My parent's saw him walking towards Petoskey, MI the other day. I hope he is successful in his efforts to raise the funds. If you should come across any articles on aging and Cerebral Palsy, would you please forward me the link(s). It is next to impossible to find any information written on the subject that is current. Everything I find is from the '90's. I would appreciate it. My best to you, Sarah and your family! Sincerely, Laura lauramarie1@hotmail.com

2008-07-20T01:11:30Z Nathan Anderson 2008-05-30T04:21:22Z 2008-05-30T04:21:22Z

[center][size=7][b]May 2008 Newsletter Cerebral Palsy News & Medical Updates[/b][/size] [font=Courier New]=----------------------------------------------------------=[/font][/center] [size=7] [b]1. CP WORLDS FIRST: [/b] You can participate in the WORLDS FIRST Global Cerebral Palsy Toy & Activity survey. Share and learn what toys and activites are appropriate for your child, listed by age and ability. Help us today - share your knowledge, and receive the free report that will share the knowledge of all the other participants. Fill out the form on our [url=http://www.cpmom.com/cpdiscussions]Discussions page.[/url] [b]2. NEW WATER THERAPY HELPS CP PATIENTS: [/b] A groundbreaking treatment at the University of North Carolina-Chapel Hill offers adults with cerebral palsy more strength, mobility and hope, researchers say. [url=http://www.sunherald.com/322/story/592128.html][More][/url] [b]3. STILT WALK FOR CEREBRAL PALSY: [/b] Neil Sauter plans to walk nearly six hours each day, rain or shine, and cover a distance of approximately 20 miles a day - on stilts, in support of CP. [url=http://www.freep.com/apps/pbcs.dll/article?AID=/20080506/NEWS06/80506068][More][/url] [b]4. REAL LIFE: WOMAN ACHIEVES DREAM OF COLLEGE DEGREE DESPITE CP: [/b]Connecticut woman achieves dream. [url=http://www.nbc30.com/community/16328004/detail.html][More][/url] [b]5. FROM INDIA - FUNCTIONAL CLOTHING FOR CP CHILDREN: [/b] Clothing has been recognized as a primary need of mankind throughout the world. It is one of the most personal components of daily life. [url=http://www.fibre2fashion.com/industry-article/11/1088/functional-clothing-for-cerebral-palsy-children1.asp][More][/url] [b]6. FROM AUSTRALIA - NEW HEART MONITORING SYSTEM TO PREVENT CP: [/b] Brisbane's Mater Mothers' Hospital says its new system to monitor the heartbeats of unborn babies can help prevent conditions like cerebral palsy. [url=http://www.abc.net.au/news/stories/2008/05/12/2241424.htm][More][/url] [b]7. FROM CANADA - REDUCING CP RISK DURING PREMATURE LABOR:[/b] Epsom salts during premature labour can reduce cerebral palsy risk. [url=http://www.canada.com/topics/lifestyle/parenting/story.html?id=a4d026c4-e748-4b17-a2f8-ce26dde415cc][More][/url] [center]Questions or Comments? Post your reply here, or email info@cpmom.com.[/center] [/size]

Nathan Anderson 2008-05-30T04:21:22Z 2008-05-26T11:55:32Z 2008-05-26T11:55:32Z

There is a story from Australia where a segway device was used to help a student move more efficiently between school classes. http://www.stuff.co.nz/auckland/4525338a6016.html [img]http://www.stuff.co.nz/images/723202.jpg[/img]

2008-05-26T11:55:32Z 2008-05-26T11:48:26Z 2008-05-26T11:48:26Z

[size=6]Here is an interesting news story about treating CP with aquatic therapy: http://www.newsobserver.com/news/story/1085457.html[/size]

2008-05-26T11:48:26Z 2008-05-24T19:46:13Z 2008-05-24T19:46:13Z

[size=6]I was at Ikea the other day, and found a very inexpensive solution for kids who need an adjustable, sturdy desk. In their home office section, you can purchase a desk called a GALLANT in 2 main parts...the desktop, and the legs. The nice thing about the legs, is that you can choose between adjustible height, or legs with castors. The desktop itself can be purchased in a variety of colors. I went with the adjustable height desk. This enables even sloping the desk to angle for your child. The legs with castors are not adjustable height, unfortunately...so I stayed away from them. The assembled desk is EXTREMELY solid and durable. The entire kit was $139. I found it very useful for my child, as I could adjust the height to fit her wheelchair or other chairs as needed. http://www.ikea.com/us/en/catalog/products/S89806740[/size]

2008-05-24T19:46:13Z 2008-05-05T17:36:50Z 2008-05-05T17:36:50Z

I have a personal care worker coming into our home to help out with my daughter for 2 hours Monday thru Friday. She helps with bathing, exercise/stretching/positioning routine, clean laundry, wash bottles, etc. Because my daughter has CP, we get medicaid through the state of Wisconsin. Medicaid pays for this service. In addition to that, we have a respite care organization through the county that will reimburse us for respite, too. They give us a certain amount of money every year for respite. I think last year it was $250, and we have to pay our respite person $10/hr. This respite organization also reimburses for one full weekend a year (up to $200 for respite) and provides a free hotel room for us along with coupons for free meals and a movie. This is all through the Rock County Respite Care Services, which is funded by United Way, I think.

2008-05-05T17:36:50Z 2008-04-28T14:03:11Z 2008-04-28T14:03:11Z

[size=7]I was wondering, how often do you moms out there get someone into to respite care with your child to get some free time alone? I try to get help once every two weeks for an afternoon. I can't afford much more than that. Also - does anyone get this respite care funded? Thanks for any help you can give.[/size]

2008-04-28T14:03:11Z 2008-04-27T20:08:58Z 2008-04-27T20:08:58Z

I found a very useful and informative website that a mother has designed, called TheCPChild.com. I'll attach a link here and in our Links section. http://www.thecpchild.com/ What do you guys this of this site?

2008-04-27T20:08:58Z 2008-04-23T02:02:47Z 2008-04-23T02:02:47Z

This discussion group is for tips for mothers on raising a child with Cerebral Palsy. This site is just getting started, but I am hoping that this will soon thrive and become a useful source of information for parents.

2008-04-23T02:02:47Z 2008-04-23T02:01:15Z 2008-04-23T02:01:15Z

I have put this website together as a tool to help mothers find a place to collaborate regarding their children with Cerebral Palsy. I also manage another website called www.cpdad.com, which is a similiar idea, but geared towards fathers. The website is still basically under construction, so you will see many changes in the coming days. I would encourage you to post any thoughts you have, especially suggestions or ideas. If you are interested in helping, check out the [url=http://www.cpmom.com/volunteer]volunteer[/url] link too! Sincerely, Nathan.

2008-04-23T02:01:15Z